Friday, May 23, 2008

Feeling Fine & Doing Fine

Hi Guys!

Well I am doing sooo much better now. I have gone back to work and am truly feeling almost normal. One of my coworkers said today "Nina you really look normal!" I said only now would I take this as a compliment. I knew what she meant.

I was out until Tuesday. But I went back to work and now I really do feel pretty much normal again. I have learned to slow down and not rush around and just take my time which is a great excuse if I forgot to do something!!! Oops, I forgot my boss may be reading this, just kidding I would never use excuses!!!! ;-)

So now some of you want to know how I felt. Well I have no words for it. I've never felt that bad before. The day after chemo was like a really bad hangover, but the days that followed............again I have no words. My body ached, I was sick to my stomach and didn't want to eat (now you know I must have been really sick!!!!) just sleep when I could. But by Tuesday I was just tired.

The only lingering issue is killer heartburn which is an effect of chemo but my doctor adjusted some meds and it's much better!

When I get a little too eager my body reminds me to sit my booty down! But all in all it's pretty good.

I look forward to seeing some of you next week. I will be home Thursday evening but please be aware, I am coming home for a wedding so Friday evening & Saturday belong to Tammy & Ed!!!!

I also met with my geneticist on Monday. The test revealed that...................................
I AM A MUTANT!!!!!!!! Okay seriously, I do have a mutation in the last letter of the last strand of my DNA or BRCA1 positive. If that makes sense to any of you. In other words I am predisposed to have breast and ovarian cancer. So now I have some other decisions to make!

Well that's all for now! Hope to see some of you, talk to others and just know that everyone else is thinking about me!

Smooches!
N

Monday, May 19, 2008

Hello all!

Well I can say that I wasn't expecting this! I'm not sure if it is just chemo or a combo of all the things that I had last week but I am truly wiped out. I appreciate all those who have called to check on me. I will hopefully feel a little better in a couple days.

I'm really tired but still in pretty good spirits.

Thanks again for all your prayers and support!

Monday, May 12, 2008

New Major Updates

Well here we go.....things have really started moving!

Well today I learned that I will be starting chemo on Wednesday. So here's a look at my week!

Tuesday: Marker clip placement which will mark the site of the tumor so that when the tumor shrinks, the surgeon will know exactly where to operate. There is a possibility that the tumor will shrink too small to see but I will still have to have surgery to make sure all margins are removed which lessens the possibility of recurrence.
I will also have some additional biopsies, these are for research purposes. I decided to take part in the research study. I figure I'm going to take chemo now anyway, I may as well try to help someone else later!!!!

Wednesday: Blood work, meet with the oncologist, then start chemo. I knew kinda figured my chemo would start this week but I wasn't looking at Wednesday!!!! But it's cool, I am just stressing about getting some work done, I hadn't planned to be out 3 days and I have tons of IEPs to write and meetings to miss (oh darn!!!!). But the paperwork will be there!

Thursday: I will still have the portacatheter placed on Thursday, and also I will be getting a booster for my immune system.

Friday: I WILL BE IN THE BED!!!!!

Things are really rolling now so we are well on the way to healing!!! I will try to blog throughout the week just to let you know how I'm feeling.

Thanks again for all your prayers, support and kind words. Please keep them all coming!

Love Ya
Smooches!!!!

FYI

Just FYI for some of you who know that I have had all these test........these are medical test that many people look at to interpret so in other words.
THESE ARE NOT DRUG STORE PREGNANCY TEST!!!!!! I NEVER GET THE RESULTS BACK IN 10 MINUTES!!!!

LOL

Smooches!!!!

5/9 Updates

5/9/08
Hello there my favorite people!!! Well, I can truly say that I have had almost every test I have heard of!!! I got so much radioactive stuff pumped into me and was put under so many gamma rays, I feel like if you make me too angry I may turn pink and start rippin’ s*** up!!!!
Anywho! So I have finally made a decision of what path my treatment will take from this point. After long deliberation with my medical team I have decided to start with chemotherapy first.
I don’t know when I will begin chemo, I meet with my oncologist on Wednesday. I will then have a port catheter placed under my collar bone on Thursday so they won’t have to continue to stick me for everything!!! The port should be somewhat undetectable but it will be there. I will have chemo every three weeks for about six months. However, my surgeon says that if the tumor is not responding enough in two months, he will do surgery then. My surgeon agrees that this is a good way to do treatment, so I feel confident that this was the right decision. The reason for starting chemo first is to shrink the tumor, not like it’s HUGE, like I stated before, but the smaller the tumor the less invasive the surgery. So it’s all good!
Okay that’s all for now but I’m sure there is more to come soon!
Love ya!

Wednesday, May 7, 2008

Since Monday!!

Well let's see. On Monday morning I met with the Genetic Counselor and Doctor. They explained what they were looking for and got information from Mom and I about family history. The results of this testing will be back in 2-3 weeks. I have an appointment on the 19th for the results.

Monday afternoon, I got a call from my surgeon's office to give me good results of the biopsy done on Wednesday. The "areas of concern" found on the MRI were all fibrous anomolies (not cancerous). That was really good news because that means the cancer is contained in only the area that was found.

I spoke to my oncologist Tuesday and they are waiting for me to make a desicion. I will be meeting with my surgeon tomorrow so I will make my decision then.

PLEASE EXCUSE ANY GRAMMATICAL ERRORS OR MISSPELLINGS!!!! I AM TIRED AND IT IS LATE!

Keeping you all informed!

Me

Saturday, May 3, 2008

Hey Guys!!!

For those of you who are visiting the site because of my last email, I forgot to say:

Keep me in your prayers and I love each of you!!!!

Nina

Latest Email

Hello Family and Friends!

Greetings from Sunny California! Again, I want to preface my update with appreciation and gratitude for all the prayers, cards, calls, texts, and emails! I really appreciate this more than any of you will ever know.

Well let's see where did we leave off! OK...this is gonna be a long one!!!!

So Monday I had an appointment with who I thought was the Genetic Counselor but turned out to be the Oncologist (a doctor who uses chemotherapy or homone therapy to treat cancer). So the nurse practictioner came in and did a short exam and started talking to me about information from the previous tests and recent MRI. Then the doctor came in and explained what chemo was and what radiation was and all about hormone therapy. He told me all the scary facts about the side effects but reassured me that they monitor these things very closely and give meds to counteract or offset the side effects and also boosts I will recieve for my white blood cells. Then he scared the piss outta me!!!!

He said he wanted me to do chemo 1st!!!!!! I was like wait, WHAT?!?!? WHY?!?!?!
He said to shrink the tumor and make the surgery easier, etc. But I'm like okay but the tumor is like 2.5 3.0 cm.....not the size of a softball!!! WTF ??
He also wanted to see if I was interested in taking part in this study he was doing since I would start chemo in like 2 weeks.

So then I talked to the RN who was with the study and she explained that I would have to have a battery of test, more biopsies, and more tests! This would last like 6 months!

Of course I was shook!!!! I had wrapped my mind around the fact that I have cancer, understood that I would have to have surgery, radiation and chemo........BUT IN THAT ORDER!!!!!!! Not chemo 1st.

So the next day I got on the phone. I called the nurse to ask her a few questions about this study and all these tests. I never said yes to the study but I agreed to the tests so I didn't have to keep going back for tests. Then I called my surgeon's Physician's Asst. The nurse answered several questions but I was still a little upset about this. I was having a lot of trouble getting my mind around this.

I played phone tag with my PA but early Wed. morning she called me to answer the questions about my biopsy that I had. She explained what the biopsy was for and I asked her about the additional biopsies for the study and asked her why I would have to do chemo 1st and if that was best. She was a little baffled it seemed. She was like that's not what Dr. Paz (my surgeon) was looking at. So she said to wait and see what the results of the biopsy showed and then we would make an informed decision on Thursday (May 8th). That made me feel sooooo much better!!!!

Mama came into town on Tuesday!!!!

So I had a second-look ultrasound and biopsy on Wed. and aside from a little soreness, I am fine! I will get the results probably on Monday but only the pathology reports from biopsies from additional lesions that were seen on the MRI. One lesion was in the left breast the other two on the right. The radiologist said that after the ultrasound that she was 98% sure that this was just fiborous anomolies (not cancer!!!!) but the biopsies were taken and I will get the results this week and then when I meet with Dr. Paz(surgeon) we will discuss all results and options of what is going on.

So next week is filled with several appts. :
(5/5) Monday - Dept. of Clinical Cancer Genetics (certain this time!!!!)
(5/6) Tuesday - MUGA Scan
(5/7) Thursday - CT Scan, Dr. Paz (surgeon), Bone Scan

The next week on the schedule so far is only on Wednesday.....Blood work & another meeting with the oncologist (Dr. Somlo)

I know that was a lot of info!!! But that's it for now. I will keep you all informed and if you missed any of the initial emails I have posted them on my new blog:

bellasamazingroadtrip.blogspot.com

4th Email

4/25/08
Hello Family & Friends,

First and foremost thank you all for your thoughts, prayers, cards, phone calls, emails and texts. I appreciate them all and hope that they continue through this little speed bump I'm going through.

Now to catch you all up on things. I will go back and give you all the details!!!

Last week, after much thought and prayer I decided to get a second opinion solely for treatment options and such. I decided to go to City of Hope National Medical Center. This place comes highly recommended and is one of the leading Cancer Research and Treatment facilities in the nation. So I did the preliminary stuff and they were to call me on Monday to schedule my actual appointment.

I had my MRI on Thursday and with the help of some great drugs, it went smoothly!!!!

I felt very comfortable with this facility and the surgeon that I was seeing so I just thought this second opinion would be another option to what I already had, but God always has plans for us that we are not aware of.

Monday morning, I opened a couple of letters from my insurance company, that had come in the mail on Saturday (I was busy and didn't open the mail....my bad!!!). The letters stated that I was approved for services to be rendered on providers that were OUT OF NETWORK !!!
CRAP!!!! Ok, not to worry, I will call my insurance company to verify what all this will mean money wise when I get to work. Before this could happen, a rep from City of Hope called and set up an appt. for Friday 8am (today). Cool. I call the insurance company and they explain that in & out of network thing AGAIN but they also confirm that City of Hope is IN NETWORK !!! Very Cool!

Monday afternoon I get a call from the radiology clinic where I had the MRI done and they said that the dr. wanted me to have a secondary look ultrasound and biopsy and wanted to schedule it for this week or early next week. I explained that I just found out they were not in my network and I had already set up and appt. at City of Hope. They were all very understanding and said the last thing I needed was to worry about money and started working to make sure I had all my reports, films and slides to be picked up to take to my appt. today. I asked what was on the MRI and of course the nurse said a dr. would have to tell me that.......so I had to wait until today!

I met Dr. Paz this morning and had an initial exam and he reviewed all my films and MRI. He came back in the room and did the most amazing description I could have ever asked for!!! He drew diagrams, flowcharts, bar graphs and a few portraits too (ok, just kidding) but really he drew diagrams, and gave me figures, all my options that were available at this point and what was coming next.

He explained that the were very curious about my genetic predisposition, especially because of my age, so they set up an appt. with an genetic counselor (Monday 2:00). Then he explained there were some other areas on the MRI they wanted to look at and scheduled another ultrasound and biopsy for Wednesday (2:15). Yes, Mama will be here Tuesday. I have a follow-up appt. on Thurs. May 8th to discuss those findings and the next steps. They are also in the process of making an appt. with the oncologist as soon as possible ( they want me to see them before I go for my follow-up w/ Dr. Paz).

All other information is the same as before (size, location, etc) oh except it is NOT contained only in the duct, it is invasive so that means it started in the duct but in also in an area outside the duct. And during the biopsy they are going to look at the lymph nodes as well.

I hope that I have given you enough info to feel informed and in the know. If not too bad cause this is all that I know!!!!

Okay, thanks again for all your support KEEP IT COMING!!!! Please know that it is much appreciated. As for my attitude and feelings. Well, to be honest......I'M FINE!!!! I know you may think I'm putting on a brave front but I'm not. I have occasional thoughts of what comes next but I just pray about it and keep kickin!!! The doctor said that "THIS IS CURABLE!" with more confidence than Kobe about his skills.....so I'm good. I will update you at least once a week from now on I promise. I will be setting up a blog soon so you can just go there to see what's going on as well. I will update you on the progress of that as it materializes.

Love you all and take care of yourselves,

Nina

3rd Email

4/15/08
Hello my people!

First, I just wanted you all to know how much I truly appreciate all the prayers and support that you have all showered over me. You will never know how much I appreciate it.

Well, the MRI has been scheduled for Thursday, April 17th, at 5pm. It will take about a week to receive the results and after that my surgeon would like to schedule the lumpectomy. I think they will have the results before then but they like to give you a long enough time just in case. Plus we gotta give my mom time to get back out here!!! But I'm looking at the end of the month or beginning of May for the surgery.

Again, keep me in your thoughts and prayers!

Love you lots,
Nina

2nd Email

4/9/08
Hello All!

Well, I meet with my surgeon today. He told me that as far as they know I am in Stage II. There is a tumor, about 2cm, and because of the size that is why they think it is Stage II. I will have a lumpectomy to remove the tumor and then chemotherapy after that. I will first have to have an MRI done to make sure there are no other areas of concern that need to be addressed before I have surgery. The MRI will occur within the next week or so, the nurse will call me with an appointment date tomorrow. After the results of the MRI surgery will be like 2-3 weeks later. I will have to wait around 6 weeks or so before I start chemo. I don't know how much chemo I will need until after the surgery and they extract a lymph node to test. If there is anything in the lymph node they will have to remove all the lymph nodes on the right. From there, the oncologist will determine how much chemo and if there is a need for radiation. So I hope I did a good job explaining this. Any questions you have just, OH HELL, Google it and tell me!!!!!! Ok, really, just ask and then I will tell you to Google it and then call me back and explain it to me!!!

Thanks for all the thoughts and prayers, I really appreciate you all. And keep them coming!

Nina

1st Email

4/8/08
Hello All!

Well, I had an initial appointment with my gynocologist and he officially gave me the results of my biopsy. The doctor told me that I had a "Ductal carcinoma"which according to some of my reading is a good thing. That means that it is contained in a milk duct. Now that's really all I know! This is the same type that my mom and grandma had so that is very encouraging since neither of them had to have further treatment after there surgeries. Okay that's it for now. Oh, my doctor also gave me a referral for a surgeon. I go to see him on Wednesday so look for a new update on Wednesday.

Keep me in your prayers!

Nina

Initial Thoughts

WTF!!!

Is that what I think it is?

Ok, it’s just a lump, nothing major.

Okay if that’s really true why is my heart pounding out of my chest. It’s okay, I have a doctor’s appt. in a couple weeks, I’ll just make sure we talk about it!
Okay so he thinks it’s a cyst, but why do I not feel that way. Why do I have a feeling this ain’t that simple.
Mammogram! Cool, ultrasound? Okay! Why is the tech so quiet? Why does she have to get the doctor?
What is it? Not a cyst huh? Okay, so what now? Biopsy? Okay, but right now I’ve gotta go, my flight leaves in a few hrs and I gotta go put my game face on!
Okay, this is uncomfortable! But the waiting is worse than the pain!!!!
Okay God, here’s the thing, I know you don’t put more on us than we can handle. So can I just tell you, I don’t think I can handle this one. No, for real, I’m not too sure about this one. Can we just call this a REALLY BIG SCARE? I’m just sayin’ !!!!

CANCER!!!!! CANCER!!!!!! I’m 35 freaking yrs. old!!!!!! What is this, my life has finally started to make sense. I am finally making things happen in my life. Me for a change. I am getting things done for me!
Why????? What do I do now?

These are the thoughts I was having up until April 4th 2008!